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Mother frantic to save clinical trial that could cure her daughter: ‘The treatment is sitting in a fridge'

By: Melissa Rudy — August 30^th 2024 at 03:30

A rare, fatal disease called SPG50 affects fewer than 100 people in the world — and one of them is Naomi Lockard, a 3-year-old in Colorado. Her mother is desperate to raise funds to save her life.